Editorial 

The Guardian view on patient data: we need a better approach

Editorial: The deal between an NHS hospital and Google’s artificial intelligence division DeepMind is a cautionary tale for the future use of sensitive data by tech monopolists
  
  

A hospital ward
‘It is not enough to say that the algorithms DeepMind develops will benefit patients and save lives. What matters is that they will belong to a private monopoly which developed them using public resources.’ Photograph: Peter Byrne/PA

Any fair-minded assessment of the dangers of the deal between the NHS and DeepMind must start by acknowledging that both sides mean well. DeepMind, owned by Google’s owners, is one of the leading artificial intelligence outfits in the world. The potential of this work applied to healthcare is very great. But it could also lead to further concentration of power in the tech giants. It is against that background that the information commissioner, Elizabeth Denham, has issued her damning verdict against the Royal Free hospital trust, which handed over to DeepMind the records of 1.6 million patients in 2015 on the basis of a vague agreement which took far too little account of the patients’ rights and their expectations of privacy.

DeepMind has almost apologised. The trust has mended its ways. Further arrangements – and there may be many – between the NHS and DeepMind will be carefully scrutinised to ensure that all necessary permissions have been asked of patients and all unnecessary data has been sanitised. There are lessons about informed patient consent to learn. But privacy is not the only angle in this case and not even the most important.Ms Denham chose to concentrate the blame on the NHS trust, since under existing law it “controlled” the data and DeepMind merely “processed” it. But this distinction misses the point that it is processing and aggregation, not the mere possession of bits, that gives the data value.

The great question is who should benefit from the analysis of all the data that our lives now generate. Privacy law builds on the concept of damage to an individual from identifiable knowledge about them. That misses the way the surveillance economy works. The data of an individual there gains its value only when it is compared with the data of countless millions more.

The use of privacy law to curb the tech giants in this instance, or of competition law in the case of the EU’s dispute with Google, both feel slightly maladapted. They do not address the real worry. It is not enough to say that the algorithms DeepMind develops will benefit patients and save lives. What matters is that they will belong to a private monopoly which developed them using public resources. If software promises to save lives on the scale that drugs now can, big data may be expected to behave as big pharma has done. We are still at the beginning of this revolution and small choices now may turn out to have gigantic consequences later. A long struggle will be needed to avoid a future of digital feudalism. Ms Denham’s report is a welcome start.

• This article was amended on 6 July 2017. An earlier version mistakenly referred to Elizabeth Denham as a Dame Elizbeth Denham.

 

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